Rare Disease Day at St. Michael's

Ellie Weisshaar

On Wednesday October 15,  the fifteen students of St. Michael's School's Pre-Kindergarten Monday/Wednesday class released purple and green balloons in recognition of Rare Disease Day. "We are very lucky to have Ellie in our class this year," stated Teacher Lynn DeCock.  Ellie Weishaar is an affectionate three year old in the class that has a rare disease called Chromosome 15q Duplication Syndrome (Dup15q micro duplication).   "We are all learning lots from her and we hope that she learns lots from all of us too." 

Some of the side effects of this disorder include poor muscle tone that affects a child's ability to move, talk, and even breath. Developmental delays include gross and fine motor control, speech, cognitive disability, sensory processing disorders, and autism spectrum disorders. Physical, occupational and speech therapy along with special education techniques can help children with this condition.  One of the secondary impacts for Ellie is scoliosis of the spine.

"Today, let's celebrate all our differences and similarities as we help Ellie have fun and learn in an environment that is inclusive to all children," stated DeCock.  The students were delighted with putting special wishes for Ellie and for anyone that has a rare disease into their balloons and watching them float up into the sky.  Ellie's mom, Lachlan Rempel gave out purple and green ribbons that signify support for the understanding and research toward rare diseases.  The class enjoyed green and purple cupcakes at snack time. 

Snack time cupcakes

Lachlan Rempel, Joanne Wittkopf and Ellie

The class guinea pig Hamish

Joanne Wittkopf helps Ellie to go outside

Ellie, the center of attention